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Re: Lazarus post# 5059

Wednesday, 01/13/2016 5:45:53 PM

Wednesday, January 13, 2016 5:45:53 PM

Post# of 5675
Do you submit posts like this just to stir the pot? To me Vtesse is irrelevant. Knowing what I know about their treatment and proposed clinical trials is why they are irrelevant. Do you know that they have proposed a trial group and control group. If your child had NP type C and you know that it is fatal would sign him/her up with Vtesse knowing that they might be getting a placebo? Or would you go with CTDH knowing that they have been successfully treating patients for over 6 years? Also did you know that Vtesse treatment requires patients to go under general anesthesia every two weeks to get treatment? This would go on for as long as they are getting treatment.
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