Mission Statement: The mission of the National Neurovision Research Institute (NNRI) is to accelerate the translation of laboratory based research into clinical trials for treatments and cures of retinal degenerative diseases.
Background of NNRI: NNRI is a newly established non-profit entity, a support organization of the Foundation Fighting Blindness (FFB). The mission of the NNRI is to accelerate the translation of laboratory based research into clinical trials for treatments and cures of retinal degenerative diseases. It is a medical research institute that will obtain support from government agencies, corporations and private foundations. It may also receive royalties or licensing fees from the drug discovery processes and commercialization of new therapies.
Goals of NNRI: The goal of NNRI is to develop a bridge between scientific, clinical, governmental, pharmaceutical and financial communities to advance clinical trials of candidate pharmaceutical and genetic therapies and delivery systems for orphan retinal degenerative diseases (RDD’s). In this regard, NNRI wishes to educate the scientific and clinical communities of opportunities and processes of drug discovery.
As a medical research institute, NNRI will search for candidate therapies and explore new pathogenetic pathways of retinal diseases to further the drug discovery process.
NNRI will raise funds to support Phase I and Phase II clinical trials in order to expedite the commercialization of candidate therapies for RDD patients. NNRI will also provide assistance to the management of clinical trials and subsequent commercialization. http://www.nnri.info/aboutus.htm
Foundation Fighting Blindness About Foundation Fighting Blindness (FFB): FFB is the largest source of non-governmental funding for retinal degenerative disease research in the world. The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa Retinitis Pigmentosa Definition
Retinitis pigmentosa (RP) refers to a group of inherited disorders that slowly lead to blindness due to abnormalities of the photoreceptors (primarily the rods) in the retina. , macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases. The Foundation has invested over $140 million to provide seed money for scientific research of diseases of the retina, which cause blindness. Further information is available at www.FightBlindness.org.
Description: This program through the National Neurovision Research Insitute (NNRI), a support organization of the Foundation Fighting Blindness would use the requested funds to continue its operation of the National Eye Evaluation and Research Network. This Network was established to enhance and accelerate military and civilian patients’ accessibility to specialized centers for evaluation of serious eye diseases affecting the retina. The NNRI will continue to develop protocols, provide clinician training, equip and implement a bio-information system, and expand the regional clinic base. http://harkin.senate.gov/approp/c.cfm?i=F9E8DE3C-6A2C-4691-BCA0-DDEE6DF1D8B4