Tuesday, June 12, 2018 4:39:10 PM
An excerpt from April 2017...
“CT Results Are In
Today we met with Dr. Urba to review the results of the CT Scan done last Friday. Because Mark has been feeling so much better we were confident that results would be positive, and they are!!! All tumors in soft tissue are basically gone. There is a mass in the area where the tumor in his adrenal gland was removed. It is the about the same size as in the last scan, so while it hasn’t shrunk, it hasn’t grown. Lesions in the bone are harder to tell with a CT, but they obviously have shrunk since his pain has continued to decrease. Whether there are still live cancer cells there, we won’t know until Mark has a PET scan in 12 weeks.
Side effects are minimal - just some skin rashes on his face and ears. Fatigue is the most common, affecting about 80% of patients. Back in December and January he was extremely fatigued, but has continued to gain more and more stamina. It seems that for him, the fatigue is more associated with the tumors than the medication. Once again, we realize how fortunate we are!
This was his last infusion with Galectin. Infusions will still be every three weeks with Ketruda only. For how long? Most likely for a full year or possibly longer, depending on how he responds. At any point the tumors could become resistant to the drugs and start growing again, at which point we would try another treatment. They could stop growing, but not go away. Side effect could kick in and become a deterrent. Of course, our hope is they will DISAPPEAR and NEVER RETURN! “
"It is difficult to get a man to understand something, when his salary depends upon his not understanding it."
Upton Sinclair
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