Tuesday, April 07, 2015 11:55:06 AM
Dateline: April 16th, 2015
Vtesse invites you to hear about their progress, ask questions and provide feedback
Dear NNPDF Niemann-Pick Type C (NPC) Family Members,
Many of you have probably been looking forward with great anticipation to the progress updates on Vtesse, Inc.’s plans for VTS-270 (cyclodextrin) for Niemann-Pick Disease, Type C (NPC), announced in January 2015.
The National Niemann-Pick Disease Foundation (NNPDF) is pleased to be able to share with you an opportunity to attend a town hall webinar hosted by the company’s leadership at Vtesse. As mentioned in their initial announcement, Vtesse is committed to keeping the community fully informed and soliciting feedback as they move forward with clinical development. The company has informed us it is still in the process of planning the pivotal clinical trial, and as such, it will not have all the answers to your questions. However, this webinar offers an exciting opportunity to be part of the discussion with Vtesse to help shape certain aspects of the company’s plan. We hope that the audience will consist of patients, their families and clinicians.
A 90-minute webinar will be held in English on April 16, 2015 at 6:30 PM CT geared toward a US and Canadian audience and one geared toward the EU Audience at 6:30 PM GMT. As a participant, you can expect to:
Meet the company’s leadership
Hear the company’s view on the advantages of conducting a clinical trial
Get a family perspective on participation in Phase I of the Cyclodextrin trial at NIH
Hear the company’s preliminary thoughts on the clinical trials
Provide feedback to the company on certain aspects of its clinical trial plans
Ask any questions that you may have
It is hoped you will take advantage of this opportunity to begin a two-way dialogue and receive information and provide input to the company on the exciting possibilities that lie ahead. Please feel free to reach out to me at nnpdf@nnpdf.org if you have any questions.
Register: US and Canadian Audience, 6:30 PM CDT*, April 16, 2015 ~ http://bit.ly/NPCWebinar
*4:30pm Pacific, 5:30pm Mountain, 6:30pm Central, 7:30pm Eastern
Sincerely,
Nadine M. Hill
Nadine M. Hill
Executive Director
National Niemann-Pick Disease Foundation
[Apr 7th, 2015 ~ blg]
________________________________________
ANYONE HERE GOING TO REGISTER???
if interested REGISTER HERE
Do note that CTDH released news today and the above was also released today (note the date at the bottom)
Like I said -- the race is ON!
Lazarus who????
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